Loving Baby J

I haven't posted in my blog for a few days.  I realized that I needed to just sit with all this for awhile and let myself take it all in.  But today I have some news and some deep thoughts.  First, the news--Baby J had his first echo-cardiogram yesterday.  And no, he hasn't been born yet!  It's amazing what they can do now.  His heart is working perfectly!  That's a big concern with children with Ds--heart problems.  And this is by no means a guarantee that he won't have or develop heart problems later, but we were very happy with this news!  A Level 2 ultrasound (just more detailed) still shows us no additional markers for Ds.  I find that interesting and somehow encouraging.  All-in-all, yesterday was a good news kind of day. Now for some deep thoughts.  Sometimes people will say things like, "Well, it could be worse."  Or..."There are so many things that could be worse,"  or...you get the idea.  I know the intentions are nothing but good.  Bu

There are some things I am afraid of right now.  First and foremost is writing this entry about scary things because some of these things I don't want to say out loud or write.  But I'm going to because I think they might hit home with other people, too.  I've always had a sort of life mantra of "Do something scary every day."  This is my scary thing today--writing about the things I'm afraid of.  Here goes. I'm afraid of not knowing what kind of Down syndrome Baby J. has.  What if it's very severe?  Can I handle that?  I know the answer, but I'm still afraid. I'm afraid that I might cry when he's born.  Oh, my gosh!  Of course I will cry!  And I think they will be tears of joy, but I'm still afraid.  What if my face shows shock or something similar?  I adore this baby already, but I'm still afraid something scary might sneak out of my face at the wrong time. I know he's going to be adorable.  I mean, he's got Jaime and

I learned so much in the past week!  And I realize I am still ignorant, and have much more to learn.  But here are some things I have learned: One in every 691 babies in the United States is born with Down syndrome.  I was shocked!  I would have guessed maybe one in every 10,000???  Approximately 6,000 babies with Down syndrome are born each year in the U.S. Wow! There are 3 types of Down syndrome, and we don't know yet which type Baby J. has.  There is Trisomy 21, the most prevalent type, representing 95% of the population with Down syndrome.  There is Mosaicism, representing 1% of the population with Down syndrome.  And finally, there is Translocation, representing about 4% of the population with Down syndrome.  You can read about all 3 types by going to http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/.  This is a very informative website. If you don't want to get all medically technical, here are some things I've learned--from my daughter and from some of the

The insights just keep on coming!  Today I've been thinking about myself and who I am and how this impacts Baby J.  I am a woman, a wife, a mother.  I will soon be a Nana.  I am a college math professor.  I am a perfectionist and an introvert.  I process slowly.  I love to read.  I'm not good at any organized sports.  I'm completely at home in the water and love to swim.  I don't like crowds.  I like silence because it never really is.  I like to travel.  I have terrible spatial sense, and I get super frustrated when things change on the computer.  I hate discussing politics or religion.  I love to think about religion.  I hate to think about politics.  All of these things and many more make up who I am.  My conclusion?  Baby J. is and will be so much more than his Down syndrome.  That represents just one tiny little chromosome of his make-up and who he will become.  So today I am putting it all in perspective and really focusing on just one thing--I am going to be Nana

Today has brought on some very new and interesting insights.  I want to start with my daughter.  As I said earlier, Jaime and I have always been very close.  But I've always thought of her even at this age as "my little girl."  I know.  Kind of silly.  I mean, she is 35 years old.  But it's a mom thing.  So when she and Ryan got pregnant, I still thought like that.  And I thought that way when she called with this news of Down syndrome--I needed to be the comforting mom.  But in the past 48 hours something has completely changed.  I see her now for the amazing woman she has become.  She has taken this news and just run with it!  She's made contacts and done research; she's cried; she's rebounded.  But most of all I have sensed this intense resolve...a tangible change I can feel through the phone.  I am in awe!  And I am so very proud!  She and Ryan have GOT this! :)

May 12, 2015 This is my blog...my first blog.  It's called "Loving Baby J."  So I think I'll start by telling you who Baby J is.  Baby J. is my soon-to-be grandson--our first grandchild!  And Baby J. has Down syndrome.  I think I'd better start at the beginning. We've been hoping for a grandchild for a very long time, as our two children are in their mid- to late thirties.  Christmas Day of 2014 we got the long-anticipated phone call.  Our daughter and son-in-law had just discovered they were pregnant!  I can't even describe the excitement and anticipation we felt, even though it was very, very early in the pregnancy.  There were some ups and downs over the next couple months for our daughter (not us--we remained ecstatic!).  She worried about carrying a baby at age 34-35, but when she saw her first ultrasound pictures, she made it over that worry hump.  In fact, she was so much over the worry that we both started buying lots of "gender-neutral&quo